I'm Totally Scared- First Descents For A Second Time

I did a stupid thing. I sat up on top of the Cliff Lodge and pretended it was like I was back in high school where I could stretch out on a lounge chair, flip through a Cosmo and soak up the sun. Less than an hour later my upper thighs are on fire. Even my chest got fried despite the SPF 50 I slapped on. I needed this morning of chill. I blew up at Ryan, and Sage was hitting the back of my leg in response to the anger. I snapped her up and forcefully plopped her on my bed, making her cry. All hell was swirling. I feel like I can't get in front of the 8 ball. Ever since Punta Cana I've been playing catch up without success. Looking ahead 10 days I'll be back home and can breathe again. I will do nothing but hunt for a new laptop, write and climb. Maybe kayak too. I don't see me pulling a C to C on account of the ATV crushing my ribs but at least I can paddle.
I wonder if I'm doing the right thing going on another First Descents trip; not because I'm taking advantage of the offering- an all-expense paid whitewater kayak adventure on the Flathead River in Glacier National Forest- but because I may not be welcome. That 'chat' I had with Whitney (one of the FD organizers) questioning whether FD was the right place for me really rattled my ego. Like a breakup from a guy when I thought things were going well, I thought, "Huh?" I wouldn't have signed up for a second camp if I didn't get something out of the camp last year. It was my feedback. It's got to be. Perhaps they're used to only hearing raves. Who would say anything negative when they get it for free? But I was critical- like I always am- not in a bad way or so I thought- but I offered up some constructive feedback that a company looking to forever improve should want to hear. I'm guessing they took it as me attacking their program; which I wasn't. I explained that of course I had an amazing time why else would I want to attend again? My sole gripe was that I felt forced to bond and share emotions. I just wanted to meet new friends (who have something in common) and learn to kayak. I wasn't looking for therapy.
This is the first year in 11 that FD will host camps for 2^nd timers. The first year- just get them down the river. Young cancer survivors testing their determination and living in the moment instead of dwelling on cancer. Many were introduced to something they never in their life thought they would be doing. Now, the second year- turn them into kayakers. The staff is excited about the new offering and so am I. To start up where I left off. Physically, not emotionally. To hone in more time on the river. But I may be entering hostile waters…and Konvict is our leader again. History. It may not be a good thing in this case. It was his job last year to force bonds and make us all share with those nightly campfire chats and I'm pretty sure he told Whitney that I often checked out. She called and we talked. She said that maybe this time around I should tell everyone that I'm an introvert when it comes to sharing emotions so no one takes it personally. I'm more nervous about the group stuff than I am about the paddling. Gulp.

Back For More

You're shitting me, I thought when my routine mammogram turned into two hours of close-ups and an appointment to come in for a biopsy. I wasn't dreaming and this wasn't last year's nightmare. It was a whole new kind of ugly. The good news- Your left breast (the one with a tumor that sucked away my summer of '09) looks great. The bad news, your right breast has microcalcifications. These look like specs of sand on a mammogram. I had five specs. Five. Five f&%king specs that could turn my life upside down again. 80 percent of calcs are benign. You get a little metal clip in your boob, a pat on your head and be on your way. 20 percent come back malignant and you're back on the operating slab and then on to radiation. I'm starting to get how people could just stop treatment altogether and say f*&k it even if their odds are good.
Every six months I have to go through this hell? This dread that it could be back. Canser. The bitch is back? And even if it doesn't turn out to be canser, my breasts will be Swiss cheese. So this Asian radiologist is describing what will happen next and all I'm thinking is how smudged her glasses are and how I want to pull them off her nose and clean them off for her. Maybe she was just seeing the dirt from her lenses? But then I see the evidence for myself. Those little fricking specs. And I want to run out of the room and cry. But I can't. I have to sit there and pretend like I'm listening to my dentist explain how to floss. I nod my head. I keep my cool. I'm going to have a stereotactic biopsy she tells me. It shouldn't hurt too bad and it won't leave much of a scar.
The procedure involves me lying flat on a coroners' table with my breast hanging from a hole in the center. Lovely. They numb me up then send a giant needle straight to the place where they 'think' the calcs are and vacuum them out. The tissue gets sent to a lab and 48 hours later, I will know.
I talked this all over with Ryan last night. Up until then I guess it hadn't hit me. I was fine all weekend. Even forgot about this 'issue'.
As I described what would happen to me today, I scared myself. Regardless of the pathology, this is my life now. Every six months for the next five years, at least, I will be forced to deal. I can never put it in my past and pretend that was someone else it happened to. Can I be strong and stoic forever? I got a copy of "Somewhere in Time" just so I could have a good excuse to ball my eyes out. I don't like feeling sorry for myself.
My doctor tried to make me feel better. "It's too soon after chemo for this to be anything bad," she said. "I'll see you in six months." God I really hope she's right.
I brought in my Zune and watched a movie while they did their thing today. It helped. Not sure if it was a smart choice to watch "Crazy Sexy Cancer"but I only had 15 minutes left and I wanted to see how the documentary ended. It took my mind off what they were doing under the table. The hot pain of the lidocaine needles, the dig of metal into my ribcage, the snap of the vacuum sucking out my insides. All were slightly dulled thanks to my headphones and lack of focus. The movie ended and I was helped up. The nurse pushed firmly over the wound to squash the bleeding but also to keep me from freaking out when I saw the hole. Oops. Too late. But I didn't freak. In the scheme of things what's one little hole compared to a 2" scar on your nipple??!!! I'll take the hole.
It's been a rough day. Did I mention my Homeowner's Association is breathing down my neck? I got a certified letter today telling me I can't rent out rooms in my house because it's a single family dwelling and that if I stop renting they won't pursue the matter further. NEWS FLASH- single family dwellings these days are defined as three unrelated people living together. That's what I got. And don't you people have anything better to do with your lives than scour Craigslist looking to 'catch' me? My Prepaid Legal lawyers are all over this one. As much as I'm irritated by their Nazi-like abuse of power, I do appreciate that the HOA actually took my mind off canser for the rest of the day. Thanks, guys. I spent all afternoon researching the laws and combing through my CC&Rs. I'm ready to walk- head high- into our annual homeowner's meeting tomorrow night. That should be fun. NOT. I wonder if the person who complained will speak up if I'm present. Or will they be chickensh*t? Stay tuned....

Welcome To First Descents or My Week At Summer Camp

So this part sucks. I can’t find a pen and have to type! 4 women in a tiny cabin, no bath, all with varying thermal temps and everyone but me trying to sleep. I want to write. Damn! Where’s that pen?
The light tapping of keys sounds more like footsteps in this dark silence. I’m exhausted yet inspired to write. I came on FD so I could have just one time in my life where a trip was for me- not work, not family- and just languish in it. But then there’s the part of me that can’t help but document this experience. I’ll say it’s for Sage. So one day she’ll understand why I left her alone with Daddy for a week while I went whitewater kayaking in Montana.

A year ago today, I was sitting on the roof of Ryan’s car, watching the Park City fireworks and wondering what having cancer means to me. At that time I had no idea what stage I was, what my treatment would be, whether I would see my daughter grow up. I was numb. I watched the lights in the sky and blanked out. I told myself not to think about it because there was nothing I could do over the holiday. On July 5, however, the wheels burned rubber. Like a leopard focused on his prey, I pounced on this cancer thing. I stopped contemplating a future (or better stressing about one) to deal with the here and now. The summer swirled down the drain- flushed like bad poopy as Sage would say.

One year later, I’m here, I’m strong, I’m ‘surviving’ and I’m about to punish myself in freezing waters for five straight days in the woods. First Descents out of Boulder, Colo., is a non-profit org that puts on something like 15 adventure camps a year for cancer survivors. Idaho, Jackson, Washington, Colorado, Montana, Utah. Rugged places if you’re up for a challenge.

My only luxury is Internet. We have to walk 5 minutes to the showers and toilets. There’s no running water nearby and no TV. It reminds me of my eight grade retreat to Yosemite.

Just yesterday I was bombarded by high-tech gadgetry. I had an MRI yesterday. The experience sucked. That’s about right. Took two nurses, several shrieks and three tries to get the IV in. An hour and 40 minutes later, both boobs were scanned and I was dressed and out the revolving door. I won’t have the results until Tuesday or Wednesday; I see my doctor a week after that. Will I be back at square one, don’t pass GO, Don’t collect $200 or will I be able to relax and feel like I’ve poked my head out of the woods? In other words, will I have to repeat last summer or not?

In a way, this trip is my last week before the news. Like a deathrow inmate getting his last meal….Or it’s a celebration of the new – I can’t say ‘me’ because I’m the same me only a little less cocky and a lot less immortal- so I’ll say it will be my homecoming. My new year; my Cancerversary. Please let it be this and not the former! All of us here – at this First Descents Camp – have some form of cancer. No one talks about cancer here. Not yet anyway. Not on our first day. Maybe we never will. This is emotional therapy by way of the physical. We get to kick our butts on the river, feel strong and come home with skills. We don’t need to deal with cancer this week. We have better things to do.

One year ago today, I wondered how my life would look. Today, I’m still wondering. Tomorrow, however, I’ll be stuffed into a plastic torpedo, forced to roll it over and swim in water only penguins appreciate. I won’t have time to think about the good or the bad of my test results. I’ll only have time to “be”.

You don’t get those kinds of opportunities that often, Sage. So I’ll understand if you choose to do something completely selfish and extreme when you’re older. Leave me alone for a week with your Daddy and do everything you can to squeeze life by the balls and make it scream in your face. You scream back, dammit! And for just that moment feel like you can control your fate.

What Not To Say To Someone With Cancer

Will everyone PLEASE chill on the cancer horror stories?? I'm a bit tired now tonight. Didn't sleep very well last night (4 hrs), spent all day at the Outdoor Retailer show, strolling along the aisles forgetting my life has changed forever and now I've had the shittiest evening of all time.
I took Sage up to Kamas for a kiddie pool party my friend was throwing. Over cake, she thought she was helping by introducing me to a woman who had grade 1 breast cancer like me. Except that after treatment and a clean diagnosis/prognosis from her dr, she got the same in the other breast and now has jaw cancer. Which means she's probably going to die sooner rather than later according to the radiology oncologist I spoke with last Thursday. Then, my friend described another friend of hers who died of brain cancer at 29 and another who has it presently, and finished by telling me her aunt died of lung cancer despite never smoking. As my friend Kristen put it, "What the hell was that woman thinking?!"
I got home, curled up in a ball in the corner of my closet and sobbed. This is not helpful nor what I need to hear right now!
I was doing fairly well for the last few days. Today, not so much. What I need right now is a good therapist, 100 other stories of how women like me live the same life span as those who never had cancer and a 2-hr pedicure/massage. Not conversations with women who can't get ahead of the eight ball or who die. I'm scared enough as it is, dammit. So please, make something up or at least save those dire tales for those outside of earshot. Thank you. :)

Finally the guts to share this with everyone....

I woke up this morning thinking- wishing - yesterday was just one big nightmare and not real. That I could go about my day as if the bomb had never been dropped.
I have breast cancer.
Well, at least that's what the radiologist seems to gravely think after surveying my follow-up mammogram and ultrasound. 'It doesn't look good, I'm afraid' he said. Oh yeah- he kept saying he was sorry- like he had bumped my cafeteria tray or something. Your instinct is to say 'that's ok' but I held my tongue ... because it's NOT OKAY! And now it's the god damn fourth of July weekend and doctors have all decided that medical issues can wait.
I have an appt wed. with a general surgeon that may or may not take my insurance so I'm not sure if I have a 'next step' yet, even though I need one. I guess I could just pay for the office visit and find another doctor to do the surgery after Dr. Neumayer makes a diagnosis but then it would be like getting a second opinion and all of this is about time. Get this thing out. We don't yet know what stage it is, whether it's spread to lymph nodes and would require radiation or chemo or both. The consensus for sure is that a lumpectomy is in order.
I figure since I was planning on a boob job eventually, that they might as well lop the whole thing off and something good can come from tragedy. Yes, tragedy. That's how I feel. I always thought that if someone told me I had cancer I would fight like hell (which I will) and have that fiercely positive attitude to carry me through it. How the hell are people positive? I've been crying at the drop of a hat since before the doc actually broke the news. I didn't cry myself to sleep because I was drunk and passed out, but this morning the tears turned back on. This isn't me- this teary chick. And that hurts even more- to feel so doomed.
The thing that scares me the most in this whole world - death- is sitting on my shoulder. I go get this biopsy, they tell me it's spread, that I need chemo, the hair falls out, I'm sick and tired all the time, my organs stop functioning and I die. That's not how I saw the rest of my life the day I met the radiologist.
I'm supposed to be holding Sage on my shoulders at the fair, dancing with her at her birthday parties, taking her skiing in Europe, hugging her at her graduation and telling her how gorgeous she looks on her wedding day. I'm supposed to be arcing at Alta when I'm 80! Not gone. Not someone's memory. I don't want people to be sorry for me. I wanted them to be envious.
Could this all just be a scare? They take a lump out like people have cysts removed all the time? But the radiologist with his somber countenance and heavy tone crushed that hope. Ryan cried too yesterday. He heard it as well. Stef talked with us after and he said that made him feel a little better. Like we had a plan and it wasn't all death and roses. He's really in this with me. I hate myself for bringing him all of this 'life'. If he dated someone his own age, he wouldn't need to experience all of this. Poor guy.
I keep going through my head - was it the junk food I eat, the coffee (but over the year it doesn't begin to total what the average - healthy- person drinks), karma? But I never killed anyone.
I've always been a lucky person. Does that mean I will also be lucky here or that my luck's run out?